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Foundation Event

2018 NMO Patient Day

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March 18 – Los Angeles, CA – The Guthy-Jackson Charitable Foundation’s “NMO State of the Union: 9th International NMO Patient Day” brought together patients, expert clinicians and researchers, industry leaders, caregivers, family and friends for a day of sharing and learning, discussing the latest updates for neuromyelitis optica (NMO) and its spectrum disorder (NMOSD).

Hosted by Founder, Victoria Jackson and moderated by GJCF Advisor, Dr. Michael Yeaman, the 2018 event focused on two key two key advances toward a cure:

  1. Tolerization
  2. Biomarkers

Launching the LEAD Campaign at the event, the foundation has created a new donate section that will help NMO Advocates raise funding for the tolerization and biomarker projects.

Click here to become an NMO LEADer.

225 Attendees from 6 Countries

 

NMO Ambassadors

NMO Ambassadors honored for raising funding for research. Honorees from left to right: Michelle Dean, Maria Loreto (accepting for Jo-Anna Steele), Gabriela Romanow, Craig & Fiona Klein. Honorees not pictured: Nick & Amy Adams, Nancy Reimer.

NMO Ambassadors honored for raising funding for research. Honorees from left to right: Michelle Dean, Maria Loreto (accepting for Jo-Anna Steele), Gabriela Romanow, Craig & Fiona Klein. Honorees not pictured: Nick & Amy Adams, Nancy Reimer.

General Sessions

  1. Welcome
  2. NMO State of the Union
  3. Next Steps to Cures – Survey
  4. Ask the Experts
  5. NMO Clinical Trials Update
  6. Patient H69: Finding Light in NMO
  7. The Power of Rare
  8. A World of Cures
  9. Q&A: Ask the Founder
  10. 2nd African Congress on NMO
  11. Development Ambassadors Awards
  12. LEAD Campaign

Breakout Sessions

  1. Ask the Experts – Open Forum
  2. Diet and Nutrition
  3. Hypnotic Techniques
  4. Simplifying the Science of NMO
  5. Bladder, Bowel, & Sexual Dysfunction
  6. Emotional Health & Stress Management
  7. Navigating Insurance & Coverage

Video Archive

Click here to access the full 2018 NMO Patient Day video gallery.

 

Photo Gallery

2018 NMO Patient Day

 Group Photo

Click here to download full size (14MB).