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NMO Story: Being Diagnosed with a Rare Disease Video

This link is to my daughters first video about her NMO story.

Since this video she has had a difficult relapse and she is working on making a follow up video with more detail.  Thank you for your work, without it I don’t know where we would be today.  We are so thankful for the work of Guthy Jackson.  God Bless.  Cori Woolf

 

 

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MY WONDERFUL GRANDSON WAS DIAGNOSED WITH NMO OCT. 2016. HE HAD BEEN DIAGNOSED WITH MS IN 2015 SO WAS ON THAT MEDICTION TILL NOW. WE ARE JUST BEGINNING THIS JOURNEY AND I AM SO GRATEFUL TO THOSE OF YOU WILLING TO SHARE YOUR STORY.

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The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

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