Ectrims 2024 Symposium Attendee Page - The Guthy-Jackson Charitable Foundation

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The holidays can be chaotic and stressful sometime

The holidays can be chaotic and stressful sometimes. What are some comforting traditions that help you manage?

Please share with us in the comments!

Remember the GJCF Patient Advocacy Team is here to support you. NMO Helpline at 800-793-4670.

#advocacy #nmo #mogad #raredisease #holiday

"La esperanza es el faro que nos guía en los mome

"La esperanza es el faro que nos guía en los momentos más oscuros."

“Hope is the beacon that guides us in the darkest moments.”

#spanishquotes #disabilityawareness #support #hope

Guest speaker announcement for the Women's Support

Guest speaker announcement for the Women's Support Group session this Saturday!💚

Dr. Kenji Jones is a dedicated and compassionate licensed marriage and family therapist with over a decade of experience in providing mental health services to diverse populations. Dr. Jones is also a self-published author of 2 books and is the founder and CEO of Aspire to Inspire Motivational Services; a non-profit organization dedicated to promoting mental health awareness to underserved and underrepresented communities through outreach and engagement.

@dr_kayjaylmft will be joining the group Saturday to discuss possible strategies for managing stress, anxiety, and more!

Registration is OPEN! Link in bio.

Mark your calendars! The locations and dates of th

Mark your calendars! The locations and dates of the 2025 NMO Patient Days have been set. 💚

Stay tuned for registration opening next year!

#nmo #awareness #patientadvocacy #education #raredisease #together #2025

We’d like to take the opportunity to celebrate o

We’d like to take the opportunity to celebrate our Patient Advocacy Council members! These remarkable individuals take pride in providing crucial resources for patients and caregivers by facilitating our virtual and hybrid monthly support groups, serving to educate and spread awareness, and connecting to those affected by NMO and MOGAD. Thank you all for your dedication to our mission!❤️🌱

Thank you to our Industry Council, Alexion, Amgen, and Genentech for supporting our community volunteers, The GJCF Patient Advocacy Council.

#NMO #MOGAD #Support #Together #Raredisease #Awareness #advocacy

Registration is still OPEN for NMO en tu idioma -

Registration is still OPEN for NMO en tu idioma - Spanish and caregiver's support group!

Spanish - December, 16th @7pm EST
Caregiver's - December 16th, @8pm EST

Sign up at the link in our bio! 💚

#NMOSD #Caregiver #Mentalwellness #Spanish #Support

Winter is here and temperatures are dropping. To a

Winter is here and temperatures are dropping. To avoid nerve pain and cold sensitivity, take some steps to keep yourself protected! ❄️☃️

Plan ahead. Pay attention to the weather forecast and if you’re going outside, bring travel blankets or extra layers to combat the cold.

Avoid Caffeine. Caffeine can cause blood vessels to narrow, limiting blood flow and increasing the chance of nerve pain. Try a nice warm decaffeinated tea!

Keep temperatures consistent. Avoid dramatic shifts in temperature. Make sure you take a gradual approach, and start at a lower heat with a heat pad or warm bath.

What are some of your tips for managing cold intolerance? Comment below!

#NMO #comfort #raredisease #together #winter #selfcare

"La resiliencia no es solo resistir, sino también

"La resiliencia no es solo resistir,
sino también crecer a través de la
adversidad."

“Resilience is not just about enduring, but
also about growing through adversity.”

#spanishquotes #disabilitysupport #awareness

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