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Mayo Clinic develops neuro test that distinguishes demyelinating diseases from MS

By The Guthy-Jackson Charitable Foundation | November 29, 2017 | 0 Comments

ROCHESTER, Minn. — Mayo Clinic has launched a first-in-the-U.S. clinical test that will help patients who recently have been diagnosed with an inflammatory demyelinating disease…

Save the Orphan Drug Tax Credit!

By The Guthy-Jackson Charitable Foundation | November 16, 2017 | 0 Comments

Tell Congress to Protect the Orphan Drug Tax Credit Right now, both the House and the Senate are reviewing the future of the Orphan Drug…

Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now!

NORD Responds to Proposed Repeal of the Orphan Drug Tax Credit

By The Guthy-Jackson Charitable Foundation | November 7, 2017 | 0 Comments

Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now! Washington, D.C., November 2, 2017—The National…

Why MOG Antibody Disease May or May Not Be Part of the Neuromyelitis Optica Spectrum

By The Guthy-Jackson Charitable Foundation | November 1, 2017 | 0 Comments

Source: Neurology Today Conference Reporter: ECTRIMS Congress PARIS—Should myelin oligodendrocyte glycoprotein (MOG) antibody disease, which causes brain inflammation, be no longer considered a disorder in the neuromyelitis optica…

Victoria Jackson inducted into the National Women's Hall of Fame

Victoria Jackson Inducted into the National Women’s Hall of Fame

By The Guthy-Jackson Charitable Foundation | October 2, 2017 | 1 Comment

Sept. 16, 2017 – Seneca Falls, NY – Victoria Jackson, Co-Founder of The Guthy-Jackson Charitable Foundation, was inducted into the National Women’s Hall of Fame…

Neuromyelitis Optica: A Potential Key to the Mechanism of NMO and a Therapeutic Target

By The Guthy-Jackson Charitable Foundation | August 17, 2017 | 0 Comments

Neurology Today A new finding about the role of an autoantibody in driving neuromyelitis optica (NMO) pathology offers a potential new therapeutic target for NMO…….

She lost her sight to a rare condition — and became a medical detective

By The Guthy-Jackson Charitable Foundation | July 22, 2017 | 0 Comments

The Washington Post Patient H69 explores a woman’s unusual autoimmune disorder and recovery…. Link to full article

A Recipe for Life:

By The Guthy-Jackson Charitable Foundation | June 1, 2017 | 0 Comments

Neurology Now When cookbook author and MasterChef winner Christine Ha lost her eyesight to a rare autoimmune disease, she thought her life was over. It…

Victoria Jackson to be Inducted into National Women’s Hall of Fame

By The Guthy-Jackson Charitable Foundation | February 9, 2017 | 0 Comments

CosmeticsDesign.com The organization, which has been honoring and celebrating the contributions of women since 1969, announced its 2017 honorees this week. Cosmetics entrepreneur Victoria Jackson…

This 33-year-old thought he could shake off his migraine. His girlfriend knew better.

By The Guthy-Jackson Charitable Foundation | November 21, 2016 | 0 Comments

The Washington Post Maybe it’s the sun, Craig Klein remembers thinking as he pondered the cause of the thrumming headache that intruded on his Florida…

The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

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