a rare approach

to a rare disease

NMOtion - Get Involved!

Learn more in how you can help make a difference with the options below.

  • Give Blood

    If you know someone who has been diagnosed with NMO, please help us with blood samples and/or clinical data donations to our Biorepository.

  • Advocate

    A disease is not rare if it affects you, so get the resources you need to join the community and get NMotion to solve NMO!

  • Donate

    100% of all donations go straight to scientific research. Support our rare approach to a rare disease.

  • Online Fundraisers

    Start your own online fundraisers and memorial pages to raise money for NMO research.

  • Share

    Help yourself and others by telling your story. Not only are you expressing yourself, but you are also giving an insight to others who may be seeking guidance in some way.

  • Recommended Reading

    Learn more about the larger conversation surrounding health, mindfulness, and autoimmunity with the recommended readings.

Clinical Trials

Clinical research is seeking better ways to prevent, diagnose, treat, and eventually cure human disease. Clinical trials are designed to determine which medicines or procedures best benefit patients.

International Clinical Consortium

Our International Clinical Consortium consists of thought leaders in over 65 institutions engaged in translational research and who practice medicine focused on Neuromyelitis Optica. These resources are coordinated by the GJCF to promote NMO research and facilitate industry-sponsored trial.


The Guthy-Jackson Charitable Foundation is dedicated to funding research to understanding the pathophysiology and biochemistry of NMO. Learn more about our sponsored institutions below.

Guthy Jackson Research
View All Current Research

Events & News Updates

From advocacy events and support groups to news articles and videos, find more ways to stay updated get involved in the NMO community.

  • NMO in the News

    Browse our Press page with articles and videos from The Washington Post, The Huffington Post, and more.

  • 2018 NMO
    Patient Day

    Click here to access photos, videos, and more from 2018 NMO Patient Day.

  • Advocacy Events

    Learn more about advocacy events happening in the future or schedule your own.

The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

No Thanks