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Save the Date

UCLA Rare Disease Day 2021

Featuring Victoria Jackson, Founder, The Guthy-Jackson Charitable Foundation.

Friday, February 26 at 1:00 p.m. PT

Hear from California Center for Rare Diseases at UCLA clinical experts, share in patient stories, and learn from advocacy leaders in the community.

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Watch Now: Online Breakout Session

NMOSD and COVID-19: Vaccines and Variants

Watch our latest Online Breakout Session from Friday, January 29, 2020 at 10 AM PDT on Facebook Live.  This one-hour event was hosted by GJCF Chief Medical Advisor Michael Yeaman,  Chief of Molecular Medicine, Harbor-UCLA Medical Center.

NMOSD & Enhancing Quality of Life

The GJCF website offers many resources for patients, caregivers, families and healthcare providers to consider in choosing how to improve quality of life.

Exciting New Announcements from our Industry Partners

The Guthy-Jackson Charitable Foundation invites you to browse our Press page for the latest news from partners like Alexion, Genentech, and Viela-Bio.

NMO Resources

The Guthy-Jackson Charitable Foundation is pleased to bring you this app full of resources relating to NMO. Whether you are a patient, an advocate, or a clinician, NMO Resources is sure to help you stay informed with the latest in research and information.

Double the Impact

All donations to The Guthy-Jackson Charitable Foundation are matched by the family. Learn more about how you can double your impact.

A Mom on a Mission

The Guthy-Jackson Charitable Foundation was established in 2008 when her beautiful teenage daughter was first diagnosed with Neuromyelitis Optica (NMO), a life-threatening autoimmune disease. At a time when so little was known about this rare “orphan” disorder, and when there were no existing foundations focused on solving NMO, Victoria Jackson dedicated herself to funding basic and clinical research desperately needed to better understand, treat and ultimately cure this devastating disease.

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A Rare Approach to a Rare Disease

Neuromyelitis optica (NMO) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves and spinal cord. Individuals with NMO develop optic neuritis, which causes pain in the eye and vision loss, and transverse myelitis, which causes weakness, numbness, and sometimes paralysis of the arms and legs

Strategic Partnerships

From the start, we saw the need to venture beyond traditional science models: by connecting experts from around the world and across multiple disciplines; by incentivizing the sharing of research vital for life-saving discoveries in the laboratory; and by creating a global community of patients, caregivers, and physicians.

NMOtion for the Cure

Start by learning more about NMO or about our foundation. Learn about clinical trials. Start or join a support groupJoin an event. Access advocacy and fundraising tools to learn and teach others about why they should care about NMO.