iNMOtion for NMOSD

The secrets to curing NMO are in you.
And you can do more than you think to help find cures.
New studies for patients and caregivers are launching now.

What's New

March 13-15, 2022 *COVID-19 Permitting
2022 International NMO Patient Day

This international event brings the NMO community together in-person and virtually to become better connected and learn about current research and programs.

Learn the key information about newly approved NMOSD therapies and how they can help save and improve lives. Speaker: Dr. Dean Wingerchuk, Chair, Department of Neurology, Mayo Clinic.

Featured Resources

First-Ever Approved
Therapies for NMOSD!

The Guthy-Jackson Charitable Foundation invites you to browse approved therapeutics for the latest news from partners like Alexion, Genentech, and Horizon.

A Smartphone App
for NMO

Whether you are a patient, an advocate, or a clinician, NMO Resources is sure to help you stay informed with the latest in research and information.

Featured Breakout Sessions

We hope everyone is well and coping with the challenges of the COVID-19 pandemic. With information changing on a daily basis, we are reaching out to the community to aid in your navigation of the many questions at hand.

A Mom on a Mission

The Guthy-Jackson Charitable Foundation was established in 2008 when her beautiful teenage daughter was first diagnosed with Neuromyelitis Optica (NMO), a life-threatening autoimmune disease. At a time when so little was known about this rare “orphan” disorder, and when there were no existing foundations focused on solving NMO, Victoria Jackson dedicated herself to funding basic and clinical research desperately needed to better understand, treat and ultimately cure this devastating disease.


A Rare Approach to a Rare Disease

Neuromyelitis optica (NMO) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves and spinal cord. Individuals with NMO develop optic neuritis, which causes pain in the eye and vision loss, and transverse myelitis, which causes weakness, numbness, and sometimes paralysis of the arms and legs

Strategic Partnerships

From the start, we saw the need to venture beyond traditional science models: by connecting experts from around the world and across multiple disciplines; by incentivizing the sharing of research vital for life-saving discoveries in the laboratory; and by creating a global community of patients, caregivers, and physicians.