mail2

NMOSD and the COVID-19 Pandemic: FAQs

We hope everyone is well and coping with the challenges of the COVID-19 pandemic. With information changing on a daily basis, we are reaching out to the NMOSD community to aid in your navigation of the many questions at hand. While the Foundation does not provide clinical care policies or recommendations, we hope these 10 frequently asked questions assist all NMOSD patients to make informed decisions with their doctors.

NMOSD & Enhancing Quality of Life

The GJCF website offers many resources for patients, caregivers, families and healthcare providers to consider in choosing how to improve quality of life.

Exciting New Announcements from our Industry Partners

The Guthy-Jackson Charitable Foundation invites you to browse our Press page for the latest news from partners like Alexion, Genentech, and Viela-Bio.

New NMO Stories Website

The Guthy-Jackson Charitable Foundation, along with the Connor B Judge Foundation, are excited to share the launch of a new website dedicated to NMO Stories. From patient and caregiver stories, to researchers and clinicians, we're inviting all stakeholders, including you, to share your NMO story.

NMO Around the World

Watch the latest video from the Guthy-Jackson Charitable Foundation. Features interviews with The Guthy-Jackson Charitable Foundation Global Ambassador Maoloude Toure as he travels through Germany, Russia, Italy, and Mali in the foundation's quest to solve Neuromyelitis Optica (NMO).

NMO Resources

The Guthy-Jackson Charitable Foundation is pleased to bring you this app full of resources relating to NMO. Whether you are a patient, an advocate, or a clinician, NMO Resources is sure to help you stay informed with the latest in research and information.

Double the Impact

All donations to The Guthy-Jackson Charitable Foundation are matched by the family. Learn more about how you can double your impact.

A Mom on a Mission

The Guthy-Jackson Charitable Foundation was established in 2008 when her beautiful teenage daughter was first diagnosed with Neuromyelitis Optica (NMO), a life-threatening autoimmune disease. At a time when so little was known about this rare “orphan” disorder, and when there were no existing foundations focused on solving NMO, Victoria Jackson dedicated herself to funding basic and clinical research desperately needed to better understand, treat and ultimately cure this devastating disease.

guthy-jackson-foundation-the-founders-about-us-about

A Rare Approach to a Rare Disease

Neuromyelitis optica (NMO) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves and spinal cord. Individuals with NMO develop optic neuritis, which causes pain in the eye and vision loss, and transverse myelitis, which causes weakness, numbness, and sometimes paralysis of the arms and legs

Strategic Partnerships

From the start, we saw the need to venture beyond traditional science models: by connecting experts from around the world and across multiple disciplines; by incentivizing the sharing of research vital for life-saving discoveries in the laboratory; and by creating a global community of patients, caregivers, and physicians.

NMOtion for the Cure

Start by learning more about NMO or about our foundation. Learn about clinical trials. Start or join a support groupJoin an event. Access advocacy and fundraising tools to learn and teach others about why they should care about NMO.