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NMOtion Blog

Discussing NMO Research and Advocacy

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The Guthy-Jackson Charitable Foundation Welcomes Christopher Clinton Conway as Executive Director

The Guthy-Jackson Charitable Foundation is pleased to welcome Christopher Clinton Conway in the newly-created position of Executive Director. Mr. Conway will serve as a highly-visible…

Young body builder battles rare autoimmune disorder

Paisley Forsell used to enjoy hiking, cliff jumping and competition body-building. She loves riding roller coasters. “I like adrenaline, I guess you’d say,” said the…

The Guthy-Jackson Charitable Foundation Celebrates 10 Years Anniversary!

August 1, 2018, marks The Guthy-Jackson Charitable Foundation’s 10 Years Anniversary! In 2008, Ali Guthy, daughter of Victoria Jackson, founder & CEO of Victoria Jackson…

Award-Winning High School Art Student Honors Grandmother by Raising Funds for NMO Research

A “Kindred” Connection

Award-Winning High School Art Student Honors Grandmother Who Has NMO “Neuromyelitis optica (NMO) is a cruel disease – and it hides,” says Bonita Melonio, whose…




Q&As See All

Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information, making information online about NMO more accessible for the sight-impaired, while also providing a forum for the patient community to discuss NMO.

Q&A about NMOChat

  Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information,…

Q&A with Dr. Brian Weinshenker

Q & A about NMO with Brian Weinshenker, M.D.

What are early warning signs that an NMO attack is imminent? BW: The major symptoms of NMO are optic neuritis and transverse myelitis. Optic neuritis…

A Brief Look at Some NMO FAQs

Let’s take a brief look at some of the common questions about NMO. You can read our full list of NMO FAQs here. What is…

New IPND Diagnostic Criteria Q & A

The recent release of new diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD) by the International Panel for Neuromyelitis Optica Diagnosis (IPND) is a critical…




Advocacy See All

Award-Winning High School Art Student Honors Grandmother by Raising Funds for NMO Research

A “Kindred” Connection

Award-Winning High School Art Student Honors Grandmother Who Has NMO “Neuromyelitis optica (NMO) is a cruel disease – and it hides,” says Bonita Melonio, whose…

Victoria Jackson Honored with Pontifical Key Advocacy Award at Unite To Cure: Fourth International Vatican Conference

April 26, 2018 – Vatican City – Victoria Jackson, Founder of The Guthy-Jackson Charitable Foundation (GJCF), was honored with the 2018 Pontifical Key Advocacy Award…

Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now!

NORD Responds to Proposed Repeal of the Orphan Drug Tax Credit

Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now! Washington, D.C., November 2, 2017—The National…

Today, donate $10 on Oct. 10 and join the 10 on 10 campaign for NMO research!

Ten on Ten: New Advocate Fundraiser for NMO Research

NMO Advocate asks you to join “TEN on TEN” for NMO research. Well, it may not be the ice bucket challenge, but if the NMO…




Foundation News See All

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The Guthy-Jackson Charitable Foundation Welcomes Christopher Clinton Conway as Executive Director

The Guthy-Jackson Charitable Foundation is pleased to welcome Christopher Clinton Conway in the newly-created position of Executive Director. Mr. Conway will serve as a highly-visible…

The Guthy-Jackson Charitable Foundation Celebrates 10 Years Anniversary!

August 1, 2018, marks The Guthy-Jackson Charitable Foundation’s 10 Years Anniversary! In 2008, Ali Guthy, daughter of Victoria Jackson, founder & CEO of Victoria Jackson…

2nd African NMO Conference 2017

Curing NMO From Ali to Mali: A team of filmmakers documented the Second African NMO Conference. They interviewed clinicians, researchers, and patients as they shared…

Victoria Jackson inducted into the National Women's Hall of Fame

Victoria Jackson Inducted into the National Women’s Hall of Fame

Sept. 16, 2017 – Seneca Falls, NY – Victoria Jackson, Co-Founder of The Guthy-Jackson Charitable Foundation, was inducted into the National Women’s Hall of Fame…




NMO Stories See All

Decoding My Medical Mystery

The last two months have been full of bloodwork, medicine, needles. On the day before mother’s day (May 12, 2018), I was admitted from my…

SEE LIGHT IN THE DARK

SEE LIGHT IN THE DARK I am Verónica C. Herrera Vega and I want to tell you my TESTIMONY WITH OPTIC NEUROMIELITIS (NMO). I am 29…

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Living with NMO – An Evil Disease

My name is a Patty Frazier, I am 59 years old.  I was diagnosed with neuromyelitis optica (NMO) three years ago.  I awoke one morning…

New to NMO

My story starts in August 2017. I had a burning sensation in my upper torso. Thought it was the start of shingles, but never broke…

The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

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