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NMOtion Blog

Discussing NMO Research and Advocacy

Recent Posts See All

Victoria Jackson Honored with Pontifical Key Advocacy Award at Unite To Cure: Fourth International Vatican Conference

April 26, 2018 – Vatican City – Victoria Jackson, Founder of The Guthy-Jackson Charitable Foundation (GJCF), was honored with the 2018 Pontifical Key Advocacy Award…

Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information, making information online about NMO more accessible for the sight-impaired, while also providing a forum for the patient community to discuss NMO.

Q&A about NMOChat

  Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information,…

Mayo Clinic develops neuro test that distinguishes demyelinating diseases from MS

ROCHESTER, Minn. — Mayo Clinic has launched a first-in-the-U.S. clinical test that will help patients who recently have been diagnosed with an inflammatory demyelinating disease…

Give to NMO Research this Holiday Giving Season

With the end of the year fast approaching, we think about what the NMO patient and NMO medical professional communities have accomplished together in 2017….




Q&As See All

Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information, making information online about NMO more accessible for the sight-impaired, while also providing a forum for the patient community to discuss NMO.

Q&A about NMOChat

  Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information,…

Q&A with Dr. Brian Weinshenker

Q & A about NMO with Brian Weinshenker, M.D.

What are early warning signs that an NMO attack is imminent? BW: The major symptoms of NMO are optic neuritis and transverse myelitis. Optic neuritis…

A Brief Look at Some NMO FAQs

Let’s take a brief look at some of the common questions about NMO. You can read our full list of NMO FAQs here. What is…

New IPND Diagnostic Criteria Q & A

The recent release of new diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD) by the International Panel for Neuromyelitis Optica Diagnosis (IPND) is a critical…




Advocacy See All

Victoria Jackson Honored with Pontifical Key Advocacy Award at Unite To Cure: Fourth International Vatican Conference

April 26, 2018 – Vatican City – Victoria Jackson, Founder of The Guthy-Jackson Charitable Foundation (GJCF), was honored with the 2018 Pontifical Key Advocacy Award…

Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now!

NORD Responds to Proposed Repeal of the Orphan Drug Tax Credit

Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now! Washington, D.C., November 2, 2017—The National…

Today, donate $10 on Oct. 10 and join the 10 on 10 campaign for NMO research!

Ten on Ten: New Advocate Fundraiser for NMO Research

NMO Advocate asks you to join “TEN on TEN” for NMO research. Well, it may not be the ice bucket challenge, but if the NMO…

5th Annual Canada NMO 5K

JOURNEY TO THE 5TH ANNUAL 5K WALK/RUN FOR NMO

NoMOreNMO’s 5K Raises $30K for NMO Research “Mom, there are no words to tell you how proud I am of you!” Riley Reimer After her…




Foundation News See All

2nd African NMO Conference 2017

Curing NMO From Ali to Mali: A team of filmmakers documented the Second African NMO Conference. They interviewed clinicians, researchers, and patients as they shared…

Victoria Jackson inducted into the National Women's Hall of Fame

Victoria Jackson Inducted into the National Women’s Hall of Fame

Sept. 16, 2017 – Seneca Falls, NY – Victoria Jackson, Co-Founder of The Guthy-Jackson Charitable Foundation, was inducted into the National Women’s Hall of Fame…

Donate to NMO Research with Facebook Fundraisers

Facebook has been reinventing the way people communicate and stay informed of their favorite organizations, and now it’s reinventing the way you can contribute to your…

Website Update for Guthy-Jackson

We at The Guthy-Jackson Charitable Foundation are excited to launch new updates to our website in order to offer you easier ways to take action…




NMO Stories See All

SEE LIGHT IN THE DARK

SEE LIGHT IN THE DARK I am Verónica C. Herrera Vega and I want to tell you my TESTIMONY WITH OPTIC NEUROMIELITIS (NMO). I am 29…

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Living with NMO – An Evil Disease

My name is a Patty Frazier, I am 59 years old.  I was diagnosed with neuromyelitis optica (NMO) three years ago.  I awoke one morning…

New to NMO

My story starts in August 2017. I had a burning sensation in my upper torso. Thought it was the start of shingles, but never broke…

Yuel Temesghen’s NMO Story

Yuel Temesghen shares a story about living with neuromyelitis optica (NMO). Hello, my name is Yuel Temesghen. I have been living with neuromyelitis optica (NMO)…

The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

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