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NMOtion Blog

Discussing NMO Research and Advocacy

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Honoring Olivia Lannoo

Honoring Olivia

Dear Katelijn & Filip, There are no words that can express our deepest sorrow, nor any words that will make the profound loss of beautiful…

NMO Patient Guide 3rd Edition Available Online

Digital NMO Patient Guide What You Need to Know 3rd Edition is available online and on our smartphone app, NMO Resources. The digital edition offers you…
Race of Joy, Race of Wonder. Jasmine Lellock ran 26.2 miles in the "Race the Rhode" Providence Marathon on May. 7, to honor her mother, Patti, who passed away from an autoimmune disease called neuromyelitis optica (NMO). A well-known advocate in the NMO community, Patti was a runner who had purchased a new pair of running shoes she planned to use to resume training after battling through multiple NMO relapses. Unfortunately, she never got the chance to use her new shoes. Channeling her mother's spirit, Jasmine wore her mother's shoes, gaining a new perspective on what struggle means, mile by mile. Through her support network, Jasmine also raised over $3,000 for NMO research. Read Jasmine's blog post, Race of Joy, Race of Wonder, as she recounts racing in her mother's shoes:

Race of Joy, Race of Wonder

Race of Joy, Race of Wonder Jasmine Lellock ran in the “Race the Rhode” Providence Marathon on May 7, to honor her mother, Patti, who passed…

NMO Advocacy at Denver Chronic Disease Awareness Day

NMO advocate Tim Woods attended Chronic Disease Awareness Day at the Denver, CO, State Capitol on March 9, raising awareness about NMO.  A collaboration of different charitable…



Q&As See All

Q&A with Dr. Brian Weinshenker

Q & A about NMO with Brian Weinshenker, M.D.

What are early warning signs that an NMO attack is imminent? BW: The major symptoms of NMO are optic neuritis and transverse myelitis. Optic neuritis…

A Brief Look at Some NMO FAQs

Let’s take a brief look at some of the common questions about NMO. You can read our full list of NMO FAQs here. What is…

New IPND Diagnostic Criteria Q & A

The recent release of new diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD) by the International Panel for Neuromyelitis Optica Diagnosis (IPND) is a critical…

Living with NMO: Q & A from the 2009 Patient Session

What is the comparison of a mild attack and a severe attack? Dr. Bruce Cree: I think we’ve probably all experienced this now. When we…



Advocacy See All

Race of Joy, Race of Wonder. Jasmine Lellock ran 26.2 miles in the "Race the Rhode" Providence Marathon on May. 7, to honor her mother, Patti, who passed away from an autoimmune disease called neuromyelitis optica (NMO). A well-known advocate in the NMO community, Patti was a runner who had purchased a new pair of running shoes she planned to use to resume training after battling through multiple NMO relapses. Unfortunately, she never got the chance to use her new shoes. Channeling her mother's spirit, Jasmine wore her mother's shoes, gaining a new perspective on what struggle means, mile by mile. Through her support network, Jasmine also raised over $3,000 for NMO research. Read Jasmine's blog post, Race of Joy, Race of Wonder, as she recounts racing in her mother's shoes:

Race of Joy, Race of Wonder

Race of Joy, Race of Wonder Jasmine Lellock ran in the “Race the Rhode” Providence Marathon on May 7, to honor her mother, Patti, who passed…

NMO Advocacy at Denver Chronic Disease Awareness Day

NMO advocate Tim Woods attended Chronic Disease Awareness Day at the Denver, CO, State Capitol on March 9, raising awareness about NMO.  A collaboration of different charitable…

Honoring a Son by Educating Thousands

Mother of a son lost to rare autoimmune disease educates tens of thousands of medical professionals. Getting up to speak to an audience can be…

#GivingTuesday NMO Toolkit

What is #GivingTuesday? Entering its fifth year, #GivingTuesday is a global day of giving fueled by the power of social media and collaboration. Celebrated on…



Foundation News See All

Donate to NMO Research with Facebook Fundraisers

Facebook has been reinventing the way people communicate and stay informed of their favorite organizations, and now it’s reinventing the way you can contribute to your…

Website Update for Guthy-Jackson

We at The Guthy-Jackson Charitable Foundation are excited to launch new updates to our website in order to offer you easier ways to take action…

Updates to NMO Resources, the GJCF Smartphone App

Since it’s initial launch last fall, the Guthy-Jackson Charitable Foundation’s mobile app has been a breakout success with 5 star ratings both the Google and…

The Guthy-Jackson Charitable Foundation’s Rare Approach to NMO

Article Three in a Three Part Series on NMO/Devic’s Syndrome By Tanya Hudson Getting a diagnosis of a horrific and rare disease is very difficult, but…



NMO Stories See All

A New Way Of Life

Hi Everyone, My name is Maureen Smith and I am 33 years old. My story begins back in Late January early February. My symptoms began…

My long journey to NMO

Over the past 4.5 years I have had 9 major surgeries hips replaced, hysterectomy, spinal surgeries, and blood transfusions, transforming my healthy, fit, body into…

NMO mistaken for M.S

My name is Mileidys Wojciechowski. I am  Cuban and I live in Florida, U.S.A. When I lived in Cuba in 1992, I saw a movie…

Finding your passion. Coping with NMO.

Hello, This is another part of Megan Woolf’s NMO story.(link below) Our hearts are full of gratitude for Guthy-Jackson and all of the people working…

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