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October 23, 2018 | Beverly Hills, CA — Chugai Pharmaceutical Co. announced positive results from one of its phase III clinical trials of satralizumab (SA237),…
September 25, 2018 | Beverly Hills, CA — The Guthy-Jackson Charitable Foundation (GJCF) congratulates Alexion Pharmaceuticals on their announcement of positive results from the PREVENT…
The Guthy-Jackson Charitable Foundation is pleased to welcome Christopher Clinton Conway in the newly-created position of Executive Director. Mr. Conway will serve as a highly-visible…
Paisley Forsell used to enjoy hiking, cliff jumping and competition body-building. She loves riding roller coasters. “I like adrenaline, I guess you’d say,” said the…
Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information,…
What are early warning signs that an NMO attack is imminent? BW: The major symptoms of NMO are optic neuritis and transverse myelitis. Optic neuritis…
Let’s take a brief look at some of the common questions about NMO. You can read our full list of NMO FAQs here. What is…
The recent release of new diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD) by the International Panel for Neuromyelitis Optica Diagnosis (IPND) is a critical…
Award-Winning High School Art Student Honors Grandmother Who Has NMO “Neuromyelitis optica (NMO) is a cruel disease – and it hides,” says Bonita Melonio, whose…
April 26, 2018 – Vatican City – Victoria Jackson, Founder of The Guthy-Jackson Charitable Foundation (GJCF), was honored with the 2018 Pontifical Key Advocacy Award…
Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now! Washington, D.C., November 2, 2017—The National…
NMO Advocate asks you to join “TEN on TEN” for NMO research. Well, it may not be the ice bucket challenge, but if the NMO…
August 1, 2018, marks The Guthy-Jackson Charitable Foundation’s 10 Years Anniversary! In 2008, Ali Guthy, daughter of Victoria Jackson, founder & CEO of Victoria Jackson…
Curing NMO From Ali to Mali: A team of filmmakers documented the Second African NMO Conference. They interviewed clinicians, researchers, and patients as they shared…
Sept. 16, 2017 – Seneca Falls, NY – Victoria Jackson, Co-Founder of The Guthy-Jackson Charitable Foundation, was inducted into the National Women’s Hall of Fame…
The last two months have been full of bloodwork, medicine, needles. On the day before mother’s day (May 12, 2018), I was admitted from my…
SEE LIGHT IN THE DARK I am Verónica C. Herrera Vega and I want to tell you my TESTIMONY WITH OPTIC NEUROMIELITIS (NMO). I am 29…
My name is a Patty Frazier, I am 59 years old. I was diagnosed with neuromyelitis optica (NMO) three years ago. I awoke one morning…
My story starts in August 2017. I had a burning sensation in my upper torso. Thought it was the start of shingles, but never broke…
