Satralizumab represents a potential new approach to treating neuromyelitis optica spectrum disorder (NMOSD), a rare, debilitating disease often misdiagnosed as multiple sclerosis (MS)… Click here…
September 12, 2019 | Beverly Hills, CA — Genentech, a member of the Roche Group, announced positive results from one of its phase III clinical…
The 46-year-old woman suddenly felt too weak to stand. She slowly lowered herself to her kitchen floor. She’d been vomiting for the past five weeks,…
Alexion Pharmaceuticals, Inc. today announced that the U.S. Food and Drug Administration (FDA) approved SOLIRIS® (eculizumab) for the treatment of neuromyelitis optica spectrum disorder (NMOSD)…
Further raising awareness and supporting fundraising campaigns for NMO research, a group of NMO Advocates has created NMOChat, a new website for sharing information,…
What are early warning signs that an NMO attack is imminent? BW: The major symptoms of NMO are optic neuritis and transverse myelitis. Optic neuritis…
Let’s take a brief look at some of the common questions about NMO. You can read our full list of NMO FAQs here. What is…
The recent release of new diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD) by the International Panel for Neuromyelitis Optica Diagnosis (IPND) is a critical…
Award-Winning High School Art Student Honors Grandmother Who Has NMO “Neuromyelitis optica (NMO) is a cruel disease – and it hides,” says Bonita Melonio, whose…
April 26, 2018 – Vatican City – Victoria Jackson, Founder of The Guthy-Jackson Charitable Foundation (GJCF), was honored with the 2018 Pontifical Key Advocacy Award…
Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now! Washington, D.C., November 2, 2017—The National…
NMO Advocate asks you to join “TEN on TEN” for NMO research. Well, it may not be the ice bucket challenge, but if the NMO…
The past year has marked exciting advances in the world of NMO. From conferences to clinical trials, the foundation is pleased to share the latest…
The Guthy-Jackson Charitable Foundation is pleased to welcome Christopher Clinton Conway in the newly-created position of Executive Director. Mr. Conway will serve as a highly-visible…
August 1, 2018, marks The Guthy-Jackson Charitable Foundation’s 10 Years Anniversary! In 2008, Ali Guthy, daughter of Victoria Jackson, founder & CEO of Victoria Jackson…
Curing NMO From Ali to Mali: A team of filmmakers documented the Second African NMO Conference. They interviewed clinicians, researchers, and patients as they shared…
Before I begin, I would like to thank you and tell you how much I appreciate you taking the time to read about my journey…
I was a 26-year-old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years. October 18,…
The last two months have been full of bloodwork, medicine, needles. On the day before mother’s day (May 12, 2018), I was admitted from my…
SEE LIGHT IN THE DARK I am Verónica C. Herrera Vega and I want to tell you my TESTIMONY WITH OPTIC NEUROMIELITIS (NMO). I am 29…
