Privacy Policy

Last updated: December 2025

This website is operated and maintained by The Guthy-Jackson Charitable Foundation, organized as a charitable trust (the “Foundation”). The Foundation is committed to the lawful, fair, and transparent processing of personal information. This Privacy Policy explains:

• What personal information we collect
• How and why we use it
• How long we retain it
• With whom we share it
• Your rights regarding your personal information

Scope of this Privacy Policy

This Privacy Notice applies to all information received by the Foundation, both online and offline, to the extent applicable under relevant law. This includes, but is not limited to, information gathered through online and in-person events, virtual workshops, online courses, podcasts, social media interactions, website content, e-books, e-newsletters, and any other electronic, written, or oral communications you have with us. It also covers information you provide to third-party vendors acting on the Foundation’s behalf when you interact with us as a website visitor, donor, fundraiser, or support staff (collectively, the “Services”). 

We periodically review and update this Privacy Policy to reflect changes in our practices, legal requirements, and regulatory guidance.

Contact Us

To exercise your rights or ask questions or comment about this privacy policy or our privacy practices, contact us at:

Email: [email protected]

Mail: 

The Guthy-Jackson Charitable Foundation
 P.O. Box 15185
 Beverly Hills, CA 90210

Phone Number: +1 (310) 620-3074

The Personal Information That We Collect or Process 

“Personal Information” is information that identifies, relates to, or describes, directly or indirectly, you as an individual, such as your name, email address, telephone number, home address, payment information, commercial information, internet activity, geolocation, professional information, and inferences drawn from other data, as defined under applicable privacy laws (for example, account information such as name, postal address, and email address, any other identifier we may use to contact you online or offline).  

The specific information we collect depends on how you interact with the Foundation. The types and categories of personal information we collect, or process include:

1. When You Visit Our Website
   • Payment information, including credit card or debit card information and information about the payment methods and services (such as PayPal) you make a donation to the Foundation. 
   • Donation history, including information about your past donations.
   • Location information, including general geographic location such as country, state or province, or city. 
   • Device information, including your IP address, device identifiers, operating system and version, preferred language, hardware identifiers, browser type and settings, and other device information.
   • Content and information you elect to provide in communications sent to us. 
   • Images, voice recordings, and videos collected or stored in connection with the Services, if you have consented to such information collection in written release.
   • Our website may include social media widgets or other third-party tools, data collected by these widgets and tools is subject to their own privacy policies. 
2. When You Register for our Events or Webinars or Complete a Form
   • We may collect your name, email address, physical address, and any information you choose to share, including your attendance type (patient, caregiver, table representative).
3. When You Make a Donation
   • Contact information, including name, address (such as home address, work address, or other address), email address, phone number, and other contact information you provide us.
   • We may collect your name, contact information, payment details, and donation history to process your contribution, issue receipts, and maintain accurate records and acknowledge receipt of your donation for tax purposes.
   • When you send a donation in honor or in memory of someone and request that an acknowledgement be sent to another individual, we will use the name and address of that individual for acknowledgement purposes only.
4. When You Contact Us
   • Your name, email address, phone number, and information you choose to provide us as part of your communication to us, including when you fill out our subscription form for our e-mails.

We also collect:

• Statistics or aggregated information. Statistical or aggregated data does not directly identify a specific person, but we may derive non-personal statistical or aggregated data from personal information. For example, we may aggregate personal information to calculate the percentage of users accessing specific website features.
• Technical information. Technical information includes information about your internet connection and usage details about your interactions with the website, such as clickstream information to, through, and from our website (including date and time), products that you view or search for; page response times, download errors, length of your visits to certain pages, page interaction information (such as scrolling, clicks, and mouse-overs), or methods used to browse away from a page.

If we combine or connect non-personal statistical or technical data with personal information so that it directly or indirectly identifies an individual, we will treat the combined information as personal information.

Google Analytics

We may share your information with Google Analytics to track and analyze the use of the Services. The Google Analytics Advertising Features that we may use include: Google Analytics Demographics and Interests Reporting, Google Display Network Impressions Reporting and Remarketing with Google Analytics. To opt out of being tracked by Google Analytics across the Services, visit https://tools.google.com/dlpage/gaoptout. You can opt out of Google Analytics Advertising Features through Ads Settings and Ad Settings for mobile apps. Other opt out means include http://optout.networkadvertising.org/ and http://www.networkadvertising.org/mobile-choice. For more information on the privacy practices of Google, please visit the Google Privacy & Terms page.

How We Collect Your Personal Information and Other Information 

You Provide Information to Us

We collect information about you when you interact with our Services, participate in surveys, fundraisers, contests, or promotions.

Automatically Through Our Services

As you navigate through and interact with our Services, we may use automatic data collection technologies to collect information that may include personal information. Information collected automatically may include usage details, IP addresses, operating system, and browser type, and information collected through cookies, web beacons, and other tracking technologies including details of your interactions with our Services, such as traffic data, and other communication data, and which resources and Services features that you access and use. 

Using automatic collection technologies helps us to improve our Services and to deliver a better and more personalized experience.

The technologies we use for this automatic data collection may include:

• Cookies. A cookie is a small file placed on your device when you interact with the Services.  You may refuse to accept or disable cookies by activating the appropriate setting on your browser or device.  However, if you select this setting, you may be unable to access certain features of the Services.
• Web Beacons. Some parts of the Services and our emails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, and single-pixel gifs) that permit the Foundation, for example, to count users who have visited those parts or [opened an email ]and for other related statistics (for example, recording the popularity of certain content and verifying system and server integrity).

When you interact with the Services, there are third parties that may use automatic data collection technologies to collect information about your or your device. These third parties may include:

• Embedded social media features, such as the Instagram widget on our website
• Device manufacturers that provide the hardware you use to access our Services
• Internet or mobile service providers that facilitate your connection to our Services

From Business Partners and Service Providers

We may receive personal information about you from other sources and combine that with information we collect directly from you. For example, we may obtain information about you from service providers that we engage to perform services on our behalf, such as email platform providers (e.g., MailChimp), payment processors, analytics, security, and anti-fraud services. 

How We Use Your Personal Information

We use information that we collect about you, or that you provide to us, including any personal information, to: 

• Provide you with the Services and any contents, features, information, products, or services that we make available through the Services.
• Fulfill and manage donations. 
• Fulfill any other purpose for which you provide it.
• Provide you with notices about your donations.
• Improve our Services, including by analyzing your information and creating aggregated data derived from your information, to develop, maintain, analyze, improve, optimize, measure, and report on our Services and their features and how users interact with them. Our analysis may include the use of technology like third-party machine learning and large language models, which may include training these models or sharing with third parties for model training.  We do not sell or share your personal information to train any models without your consent.  
• Promote our mission by placing ads on third parties’ services.
• Carry out our obligations and enforce our rights arising from any contracts entered into between you and us, including for billing and collection.
• Notify you when Services updates are available and about changes to any products or services we offer or provide though them.
• In any other way we may describe when you provide the information.
• For any other purpose with your consent.

The usage information we collect, whether connected to your personal information or not, helps us improve our Services and deliver a better and more personalized experience by enabling us to:

• Estimate our audience sizes and usage patterns.
• Store information about your preferences, allowing us to customize the Services according to your individual needs and interests.
• Speed up your searches.
• Recognize you when you return to our Services.

Who We Disclose Your Information To

We may disclose aggregated information about our users, and information that does not identify any individual, without restriction.

We may also disclose personal information that we collect, or you provide as described in this privacy policy:

• To our subsidiaries and affiliates, including but not limited to The Guthy-Jackson Research Foundation, Inc. for receipting, communications, and other mission-related administrative purposes.

• To contractors, service providers, and other third parties we use to support our organization.
• To a successor in the event of a merger, divestiture, restructuring, reorganization, dissolution, or other transfer of some or all of the Foundation’s assets, whether as a going concern or as part of bankruptcy, liquidation, or similar proceeding, in which personal information held by the Foundation is among the assets transferred.
• To fulfill the purpose for which you provide it. 
• For any other purpose disclosed by us when you provide the information.
• With your consent.

We may also disclose your personal information:

• To comply with any court order, law, or legal process, including to respond to any government or regulatory request.
• To enforce or apply our terms of use and other agreements, including for billing and collection purposes.
• If we believe disclosure is necessary or appropriate to protect the rights, property, or safety of our organization, our donors, or others. This includes exchanging information with other companies and organizations for the purposes of fraud protection and credit risk reduction.

If we transfer your personal information outside your country of residence, we will ensure that appropriate safeguards are in place to protect your information in accordance with applicable data protection laws.  These safeguards may include entering into Standard Contractual Clauses approved by the European Commission or other relevant authorities, implementing binding corporate rules, or relying on other lawful transfer mechanisms recognized under applicable law.  Where required, we will also take additional measures to ensure that your personal information receives a level of protection essentially equivalent to that provided in your home jurisdiction.

Your Rights and Choices About Your Information

This section describes mechanisms you can use to control certain uses and disclosures of your information and rights you may have under state law, depending on where you live.

• Cookies and Other Tracking Technologies. You can set your browser to refuse all or some browser cookies or other tracking technology files, or to alert you when these files are being sent. You can choose whether or not to allow the Services to collect information through other tracking technologies by opting out via cookie banner. If you disable or refuse cookies or similar tracking files, some Services features may be inaccessible or not function properly. Some browsers include a “Do Not Track” (DNT) setting that can send a signal to the online services you visit indicating you do not wish to be tracked. Because there is not a common understanding of how to interpret the DNT signal, our Services may not respond to all browser DNT signals. Instead, you can use the range of other tools to control data collection and use, including the cookie controls and advertising controls described in this policy.
• Disclosure of Your Information for Third-Party Advertising. If you do not want us to share your personal information with unaffiliated or non-agent third parties for advertising and marketing purposes, you can opt out by sending us an email stating your request to [email protected]. We do not control third parties’ collection or use of your information to serve interest-based advertising. However, these third parties may provide you with ways to choose not to have your information collected or used in this way. You can opt out of receiving targeted ads from members of the Network Advertising Initiative (“NAI”) on the NAI’s website.

How We Retain Your Personal Information

We keep the categories of personal information described in this policy for as long as reasonably necessary to fulfill the purposes described or for as otherwise legally permitted or required, such as maintaining the Services, operating our organization, complying with our legal obligations, resolving disputes, and for safety, security, and fraud prevention. This means that we consider our legal and business obligations, potential risks of harm, and nature of the information when deciding how long to retain personal information. At the end of the retention period, personal information will be deleted, destroyed, or deidentified.  We will also deidentify or anonymize data where possible.

How We Protect Your Personal Information

We use reasonable administrative, physical, and technical measures designed to protect your personal information from accidental loss or destruction and from unauthorized access, use, alteration, and disclosure. However, no website, mobile application, system, electronic storage, or online service is completely secure, and we cannot guarantee the security of your personal information transmitted to, through, using, or in connection with the Services. In particular, email, texts, and chats sent to or from the Services may not be secure, and you should carefully decide what information you send to us via such communications channels. Any transmission of personal information is at your own risk. 

The safety and security of your information also depends on you. You are responsible for taking steps to protect your personal information against unauthorized use, disclosure, and access.

Your Rights

You may have rights under certain United States state or international data protection laws. However, these rights are not absolute, and in certain cases, we may decline your request as permitted by law.  Depending upon where you are located, you may have some or all of the following rights in relation to your personal information:

• ask for access to your personal information via a ‘subject access request’;
• ask for personal information we hold about you to be corrected;
• ask for your personal information to be deleted. This enables you to ask us to delete or remove your personal information where there is no good reason for us continuing to process it;
• object to the processing of your personal information where we are relying on a legitimate interest, and there is something about your particular situation which makes you want to object to processing it;
• ask for the processing of your personal information to be restricted. This enables you to ask us to suspend the processing of personal information about you; and
• ask for your personal information to be transferred to another company.

To protect your privacy and security and the identity of the Foundation’s donors and community members, we will take certain steps to verify your identity before granting access to your information or complying with other requests. We may ask to see a copy of your ID or ask you specific security questions to confirm your identity.

If you would like to exercise any of the above rights, you can do so by emailing [email protected] or calling +1 (310) 620-3074. We endeavor to respond to a rights request within the required timeframes under applicable laws (which will vary depending on your location). If we need more time, we will inform you of the reason and extension period in writing.

Where we rely on consent to process your personal information, you have a right to withdraw your consent at any time. To withdraw your consent to receive marketing emails from us, you can contact us using the information above or visit “Update Your Preferences” or “Unsubscribe” link at the bottom of all Foundation emails.

Children’s and Minors’ Information

Our Services are not directed to children under 13 years of age in the United States, and we do not knowingly collect personal information from children under 13 without verifiable parental consent, in compliance with the Children’s Online Privacy Protection Act.

For individuals located in the European Union or the United Kingdom, we do not knowingly collect personal information from children under 16, consistent with the General Data Protection Regulation.

If we become aware that we have collected personal information from a child without the appropriate consent or authorization required by law, we will delete it promptly.

For minors between the ages of 13 and 17 in the United States, we only process personal information with appropriate consent where required by applicable law.

Links to Other Websites

This Privacy Policy does not apply to information collect by any third party (including our affiliates and subsidiaries), including through any application or content (including advertising) that may link to or be accessible from or through the Services.