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A Decade of Breakthroughs
Gloria Steinem presents Victoria Jackson – National Women’s Hall of Fame Induction
The Power of Rare Book Trailer
Maria Shriver Interviews Victoria Jackson
Window Into The Unknown: The Power of Rare
The Power of Rare
NMO Tolerization
NMOtion
How Do Clinical Trials Work?
NMO A Path to Progress
Victoria Jackson and Ali Guthy on Ellen
Pioneering a New Scientific Research Model

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This week, your 2025 Fresh Start focuses on physic

This week, your 2025 Fresh Start focuses on physical activity. Find ways to move your body and build strength to feel your best!

Adaptive exercises like chair yoga, using resistance bands while stationary, swimming, and even stretching are excellent outlets to move your body safely!

Intended for educational purposes and not as medical advice. You should discuss options and modifications with your doctor to see what is best for you.

#wellness #raredisease #nmo #MOGAD #awareness #advocacy #together #theGJCF #2025FreshStart

You’re invited to join PREVAIL, a live, virtual

You’re invited to join PREVAIL, a live, virtual event featuring an NMOSD specialist and a patient taking UPLIZNA on February 5. NMOSD specialist Michelle Betz, DO and NMOSD patient Mary will lead the conversation.

Register today at the link in our bio!

UPLIZNA is a prescription medicine used to treat adults with neuromyelitis optica spectrum disorder (NMOSD) who are anti-aquaporin-4 (AQP4) antibody positive.

Please see the Important Safety Information and Medication Guide at UPLIZNA.com.

The Guthy-Jackson Charitable Foundation NMO Helpli

The Guthy-Jackson Charitable Foundation NMO Helpline is open 24/7 to help you navigate your NMO journey. Do you need help finding an expert neurologist in your area? Do you want to connect with others in the NMO community? Are you looking for education or financial resources? A member of our patient advocacy team can help with all of that and more.

Call 1(800)793-4670.

#advocacy #patientadvocacy #nmo #mogad #help #2025 #raredisease #awareness #support #gjcf

Registration is now OPEN for Salt Lake City Region

Registration is now OPEN for Salt Lake City Regional Patient Day on March 22, 2025! Find the link in our bio!

This program will be offered virtually and in-person. No registration is required for virtual attendance.

#NMO #NMOSD #MOGAD #Together #SaltLakeCity #utah #PatientAdvocacy #Event #Rare #womenshealth #menshealth #community #education

This week, your 2025 Fresh Start focuses on mindfu

This week, your 2025 Fresh Start focuses on mindfulness and caring for your mental health. Find ways to incorporate time for yourself into each day: Mediate, learn a new skill, or create something! Join our monthly Artistry iNMOtion workshop and exercise your creativity! Registration is still open at the link in our bio.

Intended for educational purposes and not as medical advice. You should discuss options and modifications with your doctor to see what is best for you.
#wellness #2025FreshStart #advocacy #nmosd #mogad

Mascara to medicine. Watch @officialvictoriajackso

Mascara to medicine. Watch @officialvictoriajackson share her amazing story with @gayleking on CBS Mornings. Victoria Jackson says her daughter is doing well and “there is nothing you can’t do.”

#cbsmornings #frommascaratomedicine #thegjcf

Big changes are coming to air travel for passenger

Big changes are coming to air travel for passengers who rely on wheelchairs and other mobility devices!

The U.S. Department of Transportation (DOT) has issued new protections for people with disabilities in commercial air travel that will ensure that they have a safe, dignified experience. Read the full press release at the link in our bio!

[Image Description: A picture of a person's hand rests on a wheelchair in an airport with brown text over that reads, New protections for airline passengers with disabilities begin January 16, 2025. A second page shows brown text bullet points that read, Airlines must provide a safe and dignified experience. Passengers will be reimbursed or accommodated if mobility devices are delayed or damaged. On-board wheelchairs will be required on all planes with more than 60 seats by Oct. 2, 2031.]

#accessibility #travel #raredisease #nmosd #mogad #together

In collaboration with SRNA, join PAC leaders Doug

In collaboration with SRNA, join PAC leaders Doug and Holly Kirby from Utah for the community support group on Tuesday, January 14th!

Registration is open at the link in our bio!

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