Kaylanator’s Fundraiser

Two months ago, my mom was diagnosed with NMO, a rare autoimmune disease. It’s estimated that only 1-5 people are diagnosed with this condition each year. It started with a spasm in her leg, causing numbness and difficulty walking. She even fell down the stairs at home. After seeing several doctors, she finally found an AMAZING doctor who was able to diagnose her. We were told that every time she has a spasm, it takes a piece of her away.  She had a second spasm about a month ago and now experiences constant pain in her heel.  It’s been so hard to see her go through this, and it’s been difficult for our family to adjust to this new reality.

Luckily, there’s a treatment to hopefully stop these spasms from happening. She needs an infusion twice a year, which costs $140,000 per treatment.  It’s an astronomical amount that would be impossible for most families to afford. We’re so grateful that my mom’s insurance is covering the cost, but so many others aren’t as fortunate.

There is no cure for NMO, but there is hope. The Guthy Jackson Charitable Foundation is working tirelessly to help patients with NMO, and they won’t stop until they find a cure. This disease hits close to home, and it’s put a fire in me to help raise funds for this cause. Please consider donating through my stream and supporting the Guthy Jackson Charitable Foundation. Every dollar brings us closer to a cure for NMO.