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Foundation Events




Upcoming Regional Events:

New England NMO Patient Day

Saturday, Sep 22, 2018

You’re invited to attend the New England NMO Patient Day. On Sept. 22, in Boston, MA, join NMO patients, clinicians, researchers, family and friends for…







Global Partnerships for Cures – 2018 NMO Symposium @ ECTRIMS

Tuesday, October 9, 2018 Grand Hyatt Berlin Marlene-Dietrich-Platz 2, 10785 Berlin, Germany Held One Day Prior To Join leading NMO researchers and clinicians at the…

2018 NMO Patient Day

March 18 – Los Angeles, CA – The Guthy-Jackson Charitable Foundation’s “NMO State of the Union: 9th International NMO Patient Day” brought together patients, expert…

10th International NMO Roundtable Conference

The Guthy – Jackson Charitable Foundation’s 2018 International NMO Roundtable Conference, “NMO State of the Union”, was the foundation’s tenth scientific research conference. The goals…

Solving NMOSD Update and Horizons

October 24, 2017 • 5:00 – 8:00 PM Paris, France  • Crowne Plaza Paris – Neuilly   Held one day prior to ECTRIMS.   Register…




The Power of Rare – 9th Annual International Conference on NMO

The Guthy–Jackson Charitable Foundation’s 2017 International Roundtable Conference on NMO, “The Power of Rare,” was the foundation’s ninth and largest scientific event. Foundation-funded Principal Investigators,…

The Power of Rare – NMO Patient Day 2017

The Guthy-Jackson Charitable Foundation’s 8th Annual NMO Patient Day was held on March 15, in Los Angeles, CA, with the theme, “The Power of Rare.”…

NMO Symposium at ECTRIMS London

The Guthy-Jackson Charitable Foundation’s 3rd NMO Roundtable Symposium at ECTRIMS. The international symposium featured scientific, clinical and industry sessions offering the latest updates in neuromyelitis optica…

2016 NMO Patient Day

Say “Yes” to Cure NMO As a rare disease, NMO has many challenges. Low incidence and prevalence, lack of awareness about diagnostic criterion (and of…




2016 NMO Roundtable Conference

8th Annual International NMO Roundtable Conference  Say “Yes” to Cure NMO The Guthy – Jackson Charitable Foundation’s 2016 International NMO Roundtable Conference welcomed attendees from…

2015 NMO Roundtable Conference

The Guthy – Jackson Charitable Foundation’s 2015 NMO Roundtable Conference was the foundation’s seventh and largest scientific event. The goals of the NMO Roundtable Conference…

2015 NMO Patient Day

March 4, 2015 – LAX Hilton Hotel – Los Angeles, CA NMO Patient Day is unique where many firsts occur for NMO patients and family:…

2014 NMO Roundtable Conference

Executive Summary The 2014 Joint ACTRIMS-ECTRIMS Meeting allows professionals to network with peers, earn continuing medical education credits, and stay abreast of the latest developments…







The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

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