Foundation Event

2018 NMO Patient Day

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2018 NMO Patient Day

March 18, 2018
Los Angeles, CA
Hilton LAX

Click here to register online.

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elvey says:

2018 NMO Patient Day is tomorrow, 3/18/18!
Taking the liberty of posting the schedule and streaming info:

Live Stream Timeline (Pacific Times)
8:30 am – Live Stream
10:15 am – Break (Off Stream)
10:30 am – Live Stream
12:00 pm – Lunch & Breakout Sessions (Off Stream)
4:00 pm – Live Stream
5:00 pm – Adjourn
NMO Patient Day Agenda
8:30 – Welcome – Ms. Ali Guthy, Founder
8:35 – NMO State of the Union – Ms. Victoria Jackson, Founder
8:45 – Next Steps to Cures – Dr. Michael Yeaman                                                        
9:00 – Q&A: Ask the Experts
Panelists: Drs. Jeff Bennett, Ardith Courtney, May Han, Michael Levy, John Rose, Nancy Sicotte, Erin Fromm, R.N., Maureen Mealy, R.N.  
10:15 – Break                         
10:30 – Update: NMO Clinical Trials – Dr. Michael Yeaman, Dr. William Marshall – Alexion; Dr. Jack Ratchford – MedImmune/Viela Bio
11:20 – Patient H69:  Finding Light in NMO – Vanessa Potter
11:45 – The Power of Rare – Dr. Michael Yeaman
12:00 pm – 4:00 – Lunch & Breakout Sessions
4:00 – A World of Cures – Ms. Victoria Jackson, Founder                          
4:05 – Q&A: Ask the Founder – Ms. Victoria Jackson
4:10 – 2nd African Congress on NMO – Maoloude Touré, GJCF Global Ambassador
4:20 – NMO Development Ambassadors – Derek Blackway, GJCF & Heather Sowalla, NMO Advocate
4:40 – LEAD Campaign to Solve NMO
4:45 – Be an NMO LEADer – Dr. Michael Yeaman
4:50 – We are the Cure – Ms. Victoria Jackson, Founder
5:00 – Group Photo & Adjourn
Join on Facebook Live >

daelizdixie says:

When will we be notified if the grant has been approved? Also do we still need to reserve our rooms if we have submitted a travel grant request? Thanks!

There is a travel grant request in the registration page where there’s more info on what can or cannot be covered.

Hi, my sister was diagnosed as NMO in 2014 and would like to participate 2018 patient day. She lost her vision on both eyes and need my assistance. She is on disability, the cost fro flying from Houston and accommodation is huge barrier for her. I wonder if we will be able to get some help on registration fee and hotel discount.

Please email me at I live in Houston and have NMO. I am trying to start a support group. I would love to meet your sister.

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