Foundation Event
2018 NMO Patient Day
March 18 – Los Angeles, CA – The Guthy-Jackson Charitable Foundation’s “NMO State of the Union: 9th International NMO Patient Day” brought together patients, expert clinicians and researchers, industry leaders, caregivers, family and friends for a day of sharing and learning, discussing the latest updates for neuromyelitis optica (NMO) and its spectrum disorder (NMOSD).
Hosted by Founder, Victoria Jackson and moderated by GJCF Advisor, Dr. Michael Yeaman, the 2018 event focused on two key two key advances toward a cure:
- Tolerization
- Biomarkers
Launching the LEAD Campaign at the event, the foundation has created a new donate section that will help NMO Advocates raise funding for the tolerization and biomarker projects.
225 Attendees from 6 Countries
NMO Ambassadors
General Sessions
- Welcome
- NMO State of the Union
- Next Steps to Cures – Survey
- Ask the Experts
- NMO Clinical Trials Update
- Patient H69: Finding Light in NMO
- The Power of Rare
- A World of Cures
- Q&A: Ask the Founder
- 2nd African Congress on NMO
- Development Ambassadors Awards
- LEAD Campaign
Breakout Sessions
- Ask the Experts – Open Forum
- Diet and Nutrition
- Hypnotic Techniques
- Simplifying the Science of NMO
- Bladder, Bowel, & Sexual Dysfunction
- Emotional Health & Stress Management
- Navigating Insurance & Coverage
Photo Gallery
Group Photo
Click here to download full size (14MB).
Video Archive
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Welcome & NMO State of the Union – 2018 NMO Patient Day
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Next Steps to Cures – 2018 NMO Patient Day
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Ask the Experts – 2018 NMO Patient Day
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Update: NMO Clinical Trials – 2018 NMO Patient Day
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Patient H69: Finding Light in NMO – Vanessa Potter
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A World of Cures – 2018 NMO Patient Day
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NMO Development Ambassadors – 2018 NMO Patient Day
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LEAD Campaign to Solve NMO – 2018 NMO Patient Day
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Closing Remarks – 2018 NMO Patient Day
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Hypnotic Techniques to Help Manage NMO Pain – Breakout Session – 2018 NMO Patient Day
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A Decade of Breakthroughs
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Ask the Experts Open Forum – Breakout Session – 2018 NMO Patient Day