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Foundation Event

11th Annual NMO Patient Day

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March 10, 2020
11th Annual NMO Patient Day

Brings together the NMOSD community to share and learn the latest updates for NMOSD.

UCLA Meyer and Renee Luskin Conference Center
425 Westwood Plaza  |  Los Angeles CA 90095

Click here to register!



Join the Discussion

annika says:

I heard there was travel grants? Where can I find more information on that? I would be travelling from Australia.

Hi Annika, You can learn more about travel grants on the registration page or can reach out directly to the foundation at info@guthyjacksonfoundation.org.

jcardoso says:

Hi. I’m interested in attending the event with my relative who has been diagnosed. While she’s finally in treatment, access has been difficult and we’re eager to learn as much as possible. What sort of information and contacts would the event offer? Is it more of a support group kind of thing? When does registration end and will details be available before that? We would love to start making travel arrangements. Thank you for your help!

(Just in case, I’d like to post this on behalf of the above poster, Luz Myriam Baez: Ms Baez is asking for help in attending the event. She says it’s very important to her to learn more about the diagnosis and wishes for the foundation to provide information and guidance in order to stabilize her condition. She lives in Colombia, where the disease isn’t properly managed and she has not been able to access a timely or effective treatment as neurologists don’t have a full grasp of it. She hopes the foundation might be able to connect her with professionals.)

Hi, for more information, you can visit our Video Library to see the types of presentations at previous Patient Days. You can also learn more at our registration page.

Buenas tardes:
Pido el favor me permitan y me puedan ayudar para que pueda asistir al evento, es para mí de mucha importancia el poder conocer más del diagnóstico y que la fundación me pueda brindar ayuda e información ,guía para poder lograr una estabilidad de la enfermedad.
Vivo en Colombia y la enfermedad aquí no la han podido estabilizar, no he podido lograr un tratamiento a tiempo ni efectivo porque mi cubrimiento de salud me lo ha negado y debido a que los Neurólogos aquí no tienen pleno conocimiento del diagnóstico.
Pido ayuda y que me permitan acercar a la fundación o a algún profesional que me pueda brindar ayuda.

Mi nombre es Luz Myriam Báez Segura
Mi documento de identificación es Cédula de ciudadanía n.52.796.553
Vivo en Bogotá D.C-Colombia
Mi número de contacto móvil es 3007220141

Quedo muy atenta a sus comentarios y a su gran ayuda para mi caso.

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