Learn about the four main advocacy groups in NMOSD, and their incredible origin stories.
NMOtion Blog
Discussing NMO Research and Advocacy
Genentech: Creating Community in Rare Disease
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- About NMO
- NMO FAQsAnswers to some of the most frequently asked questions about NMO, featuring video interviews with leading scientists.
- Multiple Sclerosis & NMOMS and NMO are treated in different ways and early detection and treatment help ensure best outcomes.
- DiagnosisThe release of new diagnostic criteria for NMO by the International Panel for Neuromyelitis Optica Diagnosis (IPND).
- Recommended ReadingSuggested resources to read from past NMO Patient Day conferences.
- Approved TherapeuticsAfter more than 100 years with no approved treatment, today there are three approved therapeutics for NMOSD.
- Clinical Trials in NMOFind access to information, FAQs, and video resources about ongoing clinical trials in Neuromyelitis Optica Spectrum Disorder.
- ResearchBrowse through the results of over $70 million donated to basic and clinical research to solve neuromyelitis optica.
- Get Involved
- NMO-ProBy participating in surveys, research studies and clinical trials, NMOSD patients have enabled and accelerated many efforts to improve quality of life, develop new treatments & ultimately find cures for this rare disease.
- EventsNMO events are happening all around the world. Browse our listing of advocacy events, educational seminars, and more. Or post your own!
- NMOStoriesNMOStories exists to provide everyone with a voice, every stakeholder for NMO from patients and caregivers to clinicians and nurses.
- PoliticsLearn more about how to get engaged with NMOSD political advocacy.
- Support GroupsNo matter where you are on your NMO journey or how NMO affects your life, support groups aim to offer a sense of comfort and community.
- ContactContact The Guthy-Jackson Charitable Foundation with questions about NMO, advocacy, clinical trials, support, donations, and more.
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- NMO Patient Resource GuideOur full-text NMO Patient Resource Guide offers help and information to those who have been affected by NMO.
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- Podcasts and WebinarsListen to podcasts and webinars from the foundation along with our industry and nonprofit partners in the rare disease community.
- Spectrum LibraryBrowse over 1000 research publications related to neuromyelitis optica, including some of the groundbreaking research sponsored by the foundation.
- Connect the DocsExplore our map with locations of over 350 international clinicians who are experts in diagnosing and treating NMO.
- About Us
- Foundation EventsCalendar of past and upcoming foundation events, including NMO Roundtable Conference and NMO Patient Days.
- Special ProjectsLearn more about special projects including the ICC, IPND, and the CIRCLES Biorepository.
- CIRCLESCIRCLES is a clinical research study that focuses on better understanding and enabling cures for NMO.
- Industry CouncilThe Guthy-Jackson Charitable Foundation invites all members of industry to join our industry council.
- International Clinical ConsortiumThe ICC consists of thought leaders from over 25 countries performing translational research and medicine focused on NMO.
- Medical Advisors and ConsultantsThe medical advisors and consultants to The Guthy-Jackson Charitable Foundation include experts from UCLA, Johns Hopkins, and more.
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