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Genentech: Creating Community in Rare Disease

Learn about the four main advocacy groups in NMOSD, and their incredible origin stories.

Click here to view the full article.

The Southeastern NMO Support Group has been postpo

The Southeastern NMO Support Group has been postponed until Wednesday, July 30th @7:30pm EST. We look forward to seeing you there! 💚

Watch the new NMOSD Grand Rounds episode today! T

Watch the new NMOSD Grand Rounds episode today!

The Guthy-Jackson Charitable Foundation (GJCF) NMOSD Grand Rounds program aims to inform practicing neurology specialists as well as the broader spectrum of neurologists and allied healthcare providers regarding latest information in evidence-based science and medicine of NMOSD. This program features 12 essential topics addressed by experts in the field at a monthly interval. Organized and curated by GJCF advisors, this series of educational webinars enables continuing medical education (CME) credit. This program is also available to the broader NMOSD community for view on YouTube and the Guthy-Jackson Charitable Foundation's Website Education Center.

Presented by Jacqueline Palace, BM (Hons), FRCP, DM of Oxford University, Session 6 entitled “Evidence-Based Rescue Strategies for Relapse” is designed to update knowledge important for understanding potential therapeutic options to mitigate inflammatory mechanisms of NMOSD relapse and prevent or limit disability thereof. Specific discussion points in this regard include medical and procedural (plasma exchange) options based on clinical expertise and experience as well as case reports in the field.

🌈 July is Disability Pride Month — a time to

🌈 July is Disability Pride Month — a time to honor the strength, resilience, and vibrant identities within the NMOSD and MOGAD community.This month, let’s amplify the message that you deserve representation, to have access, and to be heard.

Your story inspires. 💪💚

#DisabilityPrideMonth #NMOSD #MOGAD #StrongerTogether #GuthyJacksonFoundation

All Northern Midwest NMO community members invited

All Northern Midwest NMO community members invited to join Kristin tonight at 7:30pm EST for the Northern Midwest Support Group.

Register now at the link in our bio!

🎨 Registration is OPEN for July’s virtual Art

🎨 Registration is OPEN for July’s virtual Artistry iNMOtion | Art & Wellness Workshop. This month we will be creating with Acrylic Paints guided by our amazing collaborators at @indigo_art_therapy

✨Don’t miss this chance to connect and create process art with friends and peers in the NMOSD community.

🌿In this workshop, we will explore process-focused intuitive painting, with an emphasis on mindfulness, self-expression, and creative exploration. We will begin with a warm-up exercise, followed by guided process-focused painting with acrylic paints. For closing, we will have the opportunity to reflect on our experience and art pieces in small groups.

🖌️ Be sure to register by Thursday, July 17th in order to receive your art supplies.
After that date, you’re still welcome to join—just bring your own materials!

🔗 Sign up through the link in our bio and let your creativity flow!

❤️Thank you to @alexionpharmaus @amgenbiotech @genentech for your generous support of Artistry iNMOtion.

#NMOSD #arttherapy #artworkshop #wellness #selfcare #CaregiverSupport #patientadvocacy #theGJCF #guthyjackson

Honoring Grace Mitchell, a true NMO community cham

Honoring Grace Mitchell, a true NMO community champion.

As many of you witnessed at the 2025 NMO Patient Day, we pay tribute to the unwavering dedication and inspiring spirit of Grace Mitchell. More than an advocate, Grace was a loyal friend and fierce supporter to so many in our community. She educated others, raised critical awareness, and empowered patients and caregivers to advocate for themselves for decades.

Through your voice recordings and cherished memories, we celebrate the legacy of someone whose compassion and strength touched countless lives. Thank you, Grace, for being a beacon of hope. Your light continues to guide us.
#NMOSD #NMO #GuthyJackson #CommunityHero

"Aunque el camino sea incierto, cada paso que das

"Aunque el camino sea incierto, cada paso que das es una victoria. No te rindas, cada día es una oportunidad para avanzar." 🌱✨

"Although the road may be uncertain, every step you take is a victory. Don’t give up, every day is an opportunity to move forward."

#PasosHaciaLaVictoria #AvanzarJuntos #EsperanzaEnCadaPaso #NMOSD #MOGAD

✨ 2025 Los Angeles NMO Patient Day: At a Glance✨ Hosted by The Guthy-Jackson Charitable Foundation, this unforgettable day brought together over 140 registered in-person guests—and thousands of online viewers—including patients, caregivers, industry leaders, community partners, and world-renowned neurologists. The day was filled with insight, connection, and hope.
Whether you joined us in person or virtually—thank you! 💚 If you missed it, be sure to watch the inspiring updates on research and the future of NMO from @officialvictoriajackson and Dr. Michael Yeaman. You’ll also hear expert presentations, powerful patient and caregiver stories, and so much more. We ended the day on a high note with a surprise live performance by Ivan Estrella. 🎶

We are especially grateful to our Industry Council for your generous support. @alexionpharmaus @amgenbiotech @genentech #nmosd #PatientDay2025 #NMO #NMOSD #MOGAD #LifeiNMOtion #GJCF #RareDisease #Education #Research

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