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A Rare Approach to a Rare Disease

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What is NMO?

Neuromyelitis optica (NMO) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves, spinal cord, and brain stem.

Today, due to improved awareness and advances in clinical diagnosis, research data estimate that NMO affects up to 10 in 100,000 persons. This rate suggests nearly 15,000 NMO patients in the U.S. alone, and hundreds of thousands of patients worldwide.

Living With NMO

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The Guthy-Jackson Charitable Foundation was established in 2008 when our beautiful teenage daughter was first diagnosed with Neuromyelitis Optica (NMO), a life-threatening autoimmune disease. At a time when so little was known about this rare “orphan” disorder.

Today, with industry-sponsored clinical trials underway and the promise of bold innovative cures on the horizon, we stand at a new threshold. We believe we have the means to solve NMO. In so doing, we will open more windows to solving many other autoimmune diseases. We do this for our daughter – and all the daughters and mothers, sons and fathers, families, friends and advocates who join us in our mission.

– With hope and gratitude,
Victoria Jackson, Bill & Ali Guthy

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Ali Guthy

From Ali to Mali....

A team of filmmakers documented the Second African NMO Conference. They interviewed clinicians, researchers, and patients as they shared their journeys about how NMO affects their lives, and how they’re taking action toward a cure. 

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