The Guthy-Jackson NMO Patient Advocacy Council (PAC) is committed to providing educational resources, extending awareness to urban and rural communities, and connecting patients, caregivers, and families within the local and on-line NMO community with one another.
Our volunteer initiatives focus on advancing awareness, enhancing visibility, encouraging outreach, amplifying diverse voices, and supporting individuals affected by NMO and their families, ensuring a warm welcome to our community.
Core Values
Compassion · Empowerment · Inclusivity & Diversity · Collaboration· Integrity · Innovation · Resilience · Patient-Centered Focus
The NMO Patient Advocacy Council is led by Cori Woolf, Director of Patient Advocacy and Kim Jackson-Matthews, DEIA Lead.
We encourage you to join one of our many monthly virtual Support Groups facilitated by our Advocacy Team and PAC Members. Register to join here: The Guthy-Jackson Foundation | Facebook, TikTok | Linktree
Interested in Becoming a GJCF Patient Advocacy Council (PAC) Member?
Submit your application online, meet with the GJCF Advocacy Team and complete online PAC Training. You may also choose to join an optional working group—fundraising is never required. Connect with fellow advocates, share your story, and attend community events. A small time commitment with the opportunity to make a significant impact in the rare disease community.
Jesus & Maria Loreto
Florida and Spanish speaking patients
and caregivers