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Discussing NMO Research and Advocacy

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Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now!

NORD Responds to Proposed Repeal of the Orphan Drug Tax Credit

Tell Congress to Oppose the Repeal of the Orphan Drug Tax Credit! TAKE ACTION NOW: Email or Call your Senators and Representative Now! Washington, D.C., November 2, 2017—The National…

Why MOG Antibody Disease May or May Not Be Part of the Neuromyelitis Optica Spectrum

Source: Neurology Today Conference Reporter: ECTRIMS Congress PARIS—Should myelin oligodendrocyte glycoprotein (MOG) antibody disease, which causes brain inflammation, be no longer considered a disorder in the neuromyelitis optica…

2nd African NMO Conference 2017

Watch this video on YouTube Curing NMO From Ali to Mali: A team of filmmakers documented the Second African NMO Conference. They interviewed clinicians, researchers,…

Ten on Ten: New Advocate Fundraiser for NMO Research

NMO Advocate asks you to join “TEN on TEN” for NMO research. Well, it may not be the ice bucket challenge, but if the NMO…




Victoria Jackson inducted into the National Women's Hall of Fame

Victoria Jackson Inducted into the National Women’s Hall of Fame

Sept. 16, 2017 – Seneca Falls, NY – Victoria Jackson, Co-Founder of The Guthy-Jackson Charitable Foundation, was inducted into the National Women’s Hall of Fame…

Patient H69

It’s 16th October 2012, and the going home chant is dominating conversations, but there are a few more tests that I have to pass before I…

Honoring Olivia Lannoo

Honoring Olivia

Dear Katelijn & Filip, There are no words that can express our deepest sorrow, nor any words that will make the profound loss of beautiful…

NMO Patient Guide 3rd Edition Available Online

Digital NMO Patient Guide What You Need to Know 3rd Edition is available online and on our smartphone app, NMO Resources. The digital edition offers you…




Race of Joy, Race of Wonder. Jasmine Lellock ran 26.2 miles in the "Race the Rhode" Providence Marathon on May. 7, to honor her mother, Patti, who passed away from an autoimmune disease called neuromyelitis optica (NMO). A well-known advocate in the NMO community, Patti was a runner who had purchased a new pair of running shoes she planned to use to resume training after battling through multiple NMO relapses. Unfortunately, she never got the chance to use her new shoes. Channeling her mother's spirit, Jasmine wore her mother's shoes, gaining a new perspective on what struggle means, mile by mile. Through her support network, Jasmine also raised over $3,000 for NMO research. Read Jasmine's blog post, Race of Joy, Race of Wonder, as she recounts racing in her mother's shoes:

Race of Joy, Race of Wonder

Race of Joy, Race of Wonder Jasmine Lellock ran in the “Race the Rhode” Providence Marathon on May 7, to honor her mother, Patti, who passed…

NMO Advocacy at Denver Chronic Disease Awareness Day

NMO advocate Tim Woods attended Chronic Disease Awareness Day at the Denver, CO, State Capitol on March 9, raising awareness about NMO.  A collaboration of different charitable…

Honoring a Son by Educating Thousands

Mother of a son lost to rare autoimmune disease educates tens of thousands of medical professionals. Getting up to speak to an audience can be…

Donate to NMO Research with Facebook Fundraisers

Facebook has been reinventing the way people communicate and stay informed of their favorite organizations, and now it’s reinventing the way you can contribute to your…