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Race of Joy, Race of Wonder. Jasmine Lellock ran 26.2 miles in the "Race the Rhode" Providence Marathon on May. 7, to honor her mother, Patti, who passed away from an autoimmune disease called neuromyelitis optica (NMO). A well-known advocate in the NMO community, Patti was a runner who had purchased a new pair of running shoes she planned to use to resume training after battling through multiple NMO relapses. Unfortunately, she never got the chance to use her new shoes. Channeling her mother's spirit, Jasmine wore her mother's shoes, gaining a new perspective on what struggle means, mile by mile. Through her support network, Jasmine also raised over $3,000 for NMO research. Read Jasmine's blog post, Race of Joy, Race of Wonder, as she recounts racing in her mother's shoes:

Race of Joy, Race of Wonder

Race of Joy, Race of Wonder Jasmine Lellock ran in the “Race the Rhode” Providence Marathon on May 7, to honor her mother, Patti, who passed…

NMO Advocacy at Denver Chronic Disease Awareness Day

NMO advocate Tim Woods attended Chronic Disease Awareness Day at the Denver, CO, State Capitol on March 9, raising awareness about NMO.  A collaboration of different charitable…

Honoring a Son by Educating Thousands

Mother of a son lost to rare autoimmune disease educates tens of thousands of medical professionals. Getting up to speak to an audience can be…

Donate to NMO Research with Facebook Fundraisers

Facebook has been reinventing the way people communicate and stay informed of their favorite organizations, and now it’s reinventing the way you can contribute to your…




NMO Biomarkers and You

‘NMO Biomarkers and You’ is part one in a new series titled ‘Do You Know NMO’. Test your knowledge with the interactive quiz at the end of this article….

Dining for NMO at Flatbread Company in Providence, Rhode Island.

Dining for NMO at Flatbread Company

Providence, RI – Creator of Dining for NMO, Gabriela Romanow, guest blogs about her most recent event and how you can join the program. Last…

CPODD NMO & MS Summer Camp blog post by Lisa McDaniel

CPODD Family Retreat 2016 “Superhero”

Alexander City, AL – In June 2016, the University of Alabama at Birmingham’s (UAB) Center for Pediatric Onset Demyelinating Disease (CPODD) hosted its annual retreat…

First-Ever NMO Pregnancy Support Group Conference Call recap. Guest blogger and NMO Support Group leader, Erin Miller, writes about the first-ever NMO Pregnancy Support Group teleconference she hosted in June.

First-Ever NMO Pregnancy Support Group Teleconference Recap

Guest blogger and NMO Support Group leader, Erin Miller, writes about the first-ever NMO Pregnancy Support Group teleconference she hosted in June. I started this…




Western Pennsylvania NMO Support Group meeting recap April 2016

Western Pennsylvania NMO Support Group Meeting Recap

Western Pennsylvania NMO Support Group Meeting recap, with guest blogger and support group leader Heather Sowalla. I had the opportunity to host the first Western…

NMO Caregiver Support Group Meeting Recap from NMO Patient Day 2016

NMO Caregiver Support Group Meeting Recap

NMO Caregiver Support Group Meeting recap by guest blogger and NMO Advocate Lisa McDaniel. The NMO Caregiver Support Group was amazing. The group was very…

Website Update for Guthy-Jackson

We at The Guthy-Jackson Charitable Foundation are excited to launch new updates to our website in order to offer you easier ways to take action…

Updates to NMO Resources, the GJCF Smartphone App

Since it’s initial launch last fall, the Guthy-Jackson Charitable Foundation’s mobile app has been a breakout success with 5 star ratings both the Google and…







The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

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