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NMOtion Blog

Discussing NMO Research and Advocacy

With the end of the year fast approaching, we think about what the NMO patient and NMO medical professional communities have accomplished together in 2017. With your help, basic and clinical research for neuromyelitis optica (NMO) spectrum disorder (NMOSD) is advancing at an exponential rate. Each year, new milestones are reached. As this week kicks off the Holiday Giving Season, we take a look back at some of the highlights of 2017:

CIRCLES NMO Study

  • Reached 1,000 participants
  • More locations were added in the U.S.

NMO Clinical Trials

  • Two out of three studies stopped enrolling study subjects

NMO Publications

  • Over 4,000 NMO research papers have been published

NMO International Clinical Consortium

  • Links 79 members from 24 countries

NMO Awareness & Events

NMO What You Need to Know Patient Resource Guide

NMO Podcast – “NMO and The Power of Rare”

NMO is rare, and so are you. Being rare, you hold the power to solve NMO. We look forward to ending 2017 with a strong effort to generate funds for research. Starting with Black Friday Week, you can help support NMO research by linking your AmazonSmile Account to The Guthy-Jackson Research Foundation, Inc., to donate to NMO research while you shop.  Below is a list of key dates to help you take part of the cure to NMO:

 

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  • Learn About
    Clinical Trials

    Learn how clinical trials work, whether or not you're eligible to participate, and the possible risks and benefits.

  • Advocate

    A disease is not rare if it affects you, so get the resources you need to join the community and get NMotion to solve NMO!

  • Give Blood

    If you know someone who has been diagnosed with NMO, please help us with blood samples and/or clinical data donations to our Biorepository.

The Power of Rare.

Power of Rare Book Cover

Victoria Jackson’s new book, THE POWER OF RARE: A Blueprint for a Medical Revolution, shares how a revolutionary model was created to speed discoveries that help empower patients and save lives.

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