With the end of the year fast approaching, we think about what the NMO patient and NMO medical professional communities have accomplished together in 2017. With your help, basic and clinical research for neuromyelitis optica (NMO) spectrum disorder (NMOSD) is advancing at an exponential rate. Each year, new milestones are reached. As this week kicks off the Holiday Giving Season, we take a look back at some of the highlights of 2017:
CIRCLES NMO Study
- Reached 1,000 participants
- More locations were added in the U.S.
NMO Clinical Trials
- Two out of three studies stopped enrolling study subjects
NMO Publications
- Over 4,000 NMO research papers have been published
NMO International Clinical Consortium
- Links 79 members from 24 countries
NMO Awareness & Events
- “The Power of Rare: A Blueprint for a Medical Revolution” book published
- Victoria Jackson inducted into the National Women’s Hall of Fame
- Victoria Jackson interviewed by Maria Shriver
- 2nd African NMO Conference held in Mali
- “PatientH69: The Story of My Second Sight” book published
- NMO advocates host events around the world
- New donation section added to the GJCF website
NMO What You Need to Know Patient Resource Guide
NMO Podcast – “NMO and The Power of Rare”
NMO is rare, and so are you. Being rare, you hold the power to solve NMO. We look forward to ending 2017 with a strong effort to generate funds for research. Starting with Black Friday Week, you can help support NMO research by linking your AmazonSmile Account to The Guthy-Jackson Research Foundation, Inc., to donate to NMO research while you shop. Below is a list of key dates to help you take part of the cure to NMO:
- Amazon Black Friday Deals Week – November 21 – 24
- Thanksgiving – November 23
- Black Friday – November 24
- Cyber Monday – November 27
- #GivingTuesday – November 28
- Christmas – December 25
- New Years Eve – December 31
- New Years Day – January 1