Walk for Riley and other NMO sufferers May 26
Just as baseball season was getting underway, rookie player Riley Reimer injured his ankle, and sadly, has been sidelined for spring camp. What’s more, the Coquitlam Little League Player had…
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Local patients help effort to find a cure for NMO
It’s estimated at least 2 million people, world wide, have Multiple Sclerosis. More women than men are affected. The average age of on set is 35. But there’s another disease…
Soliris For Treating NMO
Possible good news for patients with neuromyelitis optica (aka Devic’s syndrome) and for stock holders of Alexion Pharmaceuticals. The drug Soliris (eculizumab) may be a safe and effective treatment for…
Alexion’s Soliris(R) (eculizumab) Receives Orphan Drug Designation for the Treatment of Neuromyelitis Optica (NMO)
CHESHIRE, Conn., Jun 27, 2013 (BUSINESS WIRE) — Alexion Pharmaceuticals, Inc. ALXN today announced that Soliris(R) (eculizumab), the company’s first-in-class terminal complement inhibitor, has been granted an orphan drug designation…
‘Team Nathan’ golf tourney is Aug. 24
Neuromyelitis Optica is an uncommon illness – one most people probably have not heard of at all. But it’s something Nathan Gilbert, 12, and many other children face each day….
Highlights from ECTRIMS in Amsterdam
October 19-22 was the international multiple sclerosis meeting called ECTRIMS. Over 7700 people including neurologists from around the globe convened at this meeting. Many clinical trials were presented on new…
Student Plans to Attend UM, but Staggering Medical Bills Threaten Dream
Staggering medical bills threaten student’s dream of attending the University of Miami. This past summer was on its way to being one of the best years of Jazzmin Peluchette’s life….
NMO Advocate on The Price is Right
Watch Heather Sheppard on television game show – Jan. 30 NMO Advocate Heather Sheppard vacationed in Los Angeles, CA. Fulfilling a life-long dream, she attended a taping of historic television…
Neuromyelitis Optica – A Rare and Perplexing Disease
Article One in a Three Part Series on NMO/Devic’s Syndrome By Tanya Hudson My best friend in the world is probably the strongest person I know. She is a vibrant mother…
NMO vs. MS
Article Two in a Three Part Series on NMO/Devic’s Syndrome By Tanya Hudson Since my friend’s diagnosis of Neuromyelitis Optica in January of 2012 we have been doing our best to…
NMO Advocate Appears on The Price is Right
Local media feature about NMO Advocate Heather Sheppard appearing on the popular television game show, “The Price is Right,” while also raising awareness for NMO….
The Guthy-Jackson Charitable Foundation’s Rare Approach to NMO
Article Three in a Three Part Series on NMO/Devic’s Syndrome By Tanya Hudson Getting a diagnosis of a horrific and rare disease is very difficult, but one of the biggest difficulties…