Victoria Jackson and Ali Guthy on Ellen
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How Do We See in the Dark?
Narrator: How do we see in the dark? It’s not just an existential question. It’s a question that I ask every day. That all NMO patients, clinicians and scientists ask….
Pioneering a New Scientific Research Model
Dr. Michael Yeaman: An orphan disease is a disease for which there is no good therapy. Most orphan diseases happen to also be rare diseases. The relationship there is that…
Living with NMO
Rachel Tracy-Scheaffer: At about 2:00 in the morning I woke up and it really literally felt like somebody was pulling my spinal cord out of my brain. It just was…
From Mascara to Medicine: A Mom on a Mission
Victoria Jackson: I could have never predicted the course of how my life is going right now, but my daughter Ali was all of a sudden unexpectedly diagnosed with NMO….
Creating a New Dialogue About NMO
Reese W.: My friend Victoria Jackson called me one day and told me that her daughter had been ill, and to hear that anything would be affecting this young woman’s…
Looking Back …Moving Forward
Narrator: Five years ago, we were alone, wandering in the dark, and every decision felt impossible, overwhelming. Then, from a single spark light poured into the room. From urgent questions,…
Ali’s Story with Kathy Najimy Part 1
Kathy Najimy: Hi, I’m Katie Couric. That’s a lie. I’m lying. I am Diane Sawyer. What? No, I’m lying again. I am Kathy Najimy, and I am here today because…
The Foundation with Kathy Najimy Part 2
Kathy Najimy: How did you reach the scientist and doctors? I would know my doctor, my friend Robin’s doctor and maybe one other. How did you reach- Victoria Jackson: Well-…
Hope with Kathy Najimy Part 3
Kathy Najimy: You’re giving some hope to this condition. Like I said before when I went to your first symposium, that was the thing that struck me the most was…
Kathy Najimy interviews Victoria Jackson
Kathy Najimy: Hi, I’m Katie Couric, that’s a lie. I’m lying, I am Diane Sawyer. What? No, I’m lying again. I am Kathy Najimy and I am here today because…
The Guthy-Jackson Charitable Foundation 2009 NMO Patient Day
Victoria Jackson: Well, it is so, so nice. You have no idea how glad I am to see all of you here today. Victoria Jackson: The patient day, I mean,…