Support Groups
Rare to the Rescue No matter where you are on your NMO journey or how NMO affects your life, support groups aim to offer a sense of comfort and community….
Search Results:
NMOPedia
Introduction NMOpedia: Digital Education Platform is a series of informational PowerPoint presentations made available for the scientific community by The Guthy-Jackson Charitable Foundation and its trusted team of scientific advisors….
Recommended Reading
Recommended Reading The Power of Rare The Power of Rare Back The Power of Rare The Power of Rare A Blueprint for a Medical Revolution Author(s): Victoria Jackson & Dr….
Clinical Trials in NMO
Rare to the Rescue How Do Clinical Trials Work? At present there is no definitive “cure” for neuromyelitis optica (NMO). Clinical research is seeking to find better ways to prevent,…
Advocacy
Get Cureageous™ Enhance Wellness Experience Through Education & Advocacy Every person affected by NMOSD or MOGAD has a unique journey. Immune systems change over a lifespan, therapies affect people differently,…
The NMO Story
Narrator: Can solving one rare autoimmune disease unlock the door to solving all autoimmune diseases? It’s called neuromyelitis optica or NMO for short. And as little as seven years ago,…
Ali Guthy and The Guthy-Jackson Charitable Foundation
Ali Guthy: Neuromyelitis optica, NMO, is such a rare disease that seven years ago, a Google search would have yielded almost no results. Maybe a few obscure and terrifying accounts…
NMOtion
Narrator: Where will a cure for NMO come from? Time doesn’t stop for us. We can’t wait any longer. We must act. So to everyone who asks, how will I…
NMO A Path to Progress
Howard Weiner, MD: There are diseases that are not that common, but they can really destroy people’s lives. We can’t let that happen. Howard Weiner, MD: A disease may be…