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Emotional Health & Stress Management in NMO – Breakout Session – 2018 NMO Patient Day

Dr. Ira Lesser: Okay. So, if you’re here, this is the talk on emotional reactions and stress reduction. Thank you all for coming. I’m Ira Lesser, I’m Chair of Psychiatry…

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Hypnotic Techniques to Help Manage NMO Pain – Breakout Session – 2018 NMO Patient Day

Dyan Haspel-Johnson: Hello, everybody. You all have on your seats a form. And if you can just fill it out, and sign it, and then just we’ll collect it before…

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Bladder, Bowel and Sexual Dysfunction in NMO – Breakout Session – 2018 NMO Patient Day

Dr. Cabahug: Good afternoon everyone. My name is Doctor Cabahug, I’m a physiatrist from Johns Hopkins slash Kennedy Krieger Institute in Baltimore. Today we’re going to talk about bowel and…

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Kathy Najimy interviews Victoria Jackson

Kathy Najimy: Hi, I’m Katie Couric, that’s a lie. I’m lying, I am Diane Sawyer. What? No, I’m lying again. I am Kathy Najimy and I am here today because…

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Complexity and heterogeneity in demyelinating disease

In 1894, Eug?ne Devic (1858–1930) described a 45-year-old female hatter in whom ‘l’autopsie r?v?la l’existence d’un foyer de my?lite aigu? diffuse localis?e ? la r?gion du renflement lombaire et d’une…

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About Us

About Us About Us The Guthy-Jackson Charitable Foundation Founders Our Team About Us Annual Reports Medical Advisors & Consultants Industry Council CIRCLES Biobank Special Projects & Programs Funded Research…

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Diagnosis

Diagnosis Diagnosis Diagnosis Publications Download Resources The Interview About the IPND The Panel NMO-IgG Test Access Diagnosis Back The 2015 consensus diagnostic criteria for NMO and NMO spectrum disorders…

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Welcome & NMO State of the Union – 2018 NMO Patient Day

Ali: Good morning, everyone. It’s my honor, as always, to welcome you to Patient Day. This is our ninth annual Patient Day, it’s very exciting. I am very excited to…

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NMO-Pro – Impact of COVID-19 on NMOSD

GJCF NMO-PRO Survey

Thank you for your interest in participating in NMO-Pro surveys. By participating in surveys, research studies and clinical trials, NMOSD patients have enabled and accelerated many efforts to improve quality of life, develop new treatments & ultimately find cures for this rare disease. Rare patients helping rare patients. That is the power of rare.

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Victoria Jackson inducted into the National Women's Hall of Fame

Victoria Jackson Inducted into the National Women’s Hall of Fame

Sept. 16, 2017 – Seneca Falls, NY – Victoria Jackson, Co-Founder of The Guthy-Jackson Charitable Foundation, was inducted into the National Women’s Hall of Fame in recognition of her distinguished…

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Recommended Reading

Recommended Reading The Power of Rare The Power of Rare Back The Power of Rare The Power of Rare A Blueprint for a Medical Revolution Author(s): Victoria Jackson &…

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New IPND Diagnostic Criteria Q & A

The recent release of new diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD) by the International Panel for Neuromyelitis Optica Diagnosis (IPND) is a critical and exciting step toward a…

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