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Events Calendar Event Description Event Headline (required) Event Main Image (required) Event Description (required) Event Details Date Time Website (required) Venue Name (required) Address (required) City (required) State (required) Zip…

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Emotional Health & Stress Management in NMO – Breakout Session – 2018 NMO Patient Day

Dr. Ira Lesser: Okay. So, if you’re here, this is the talk on emotional reactions and stress reduction. Thank you all for coming. I’m Ira Lesser, I’m Chair of Psychiatry…

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Clinical Trials in NMO

How Do Clinical Trials Work? At present there is no definitive “cure” for neuromyelitis optica (NMO). Clinical research is seeking to find better ways to prevent, diagnose, treat, and eventually…

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Hypnotic Techniques to Help Manage NMO Pain – Breakout Session – 2018 NMO Patient Day

Dyan Haspel-Johnson: Hello, everybody. You all have on your seats a form. And if you can just fill it out, and sign it, and then just we’ll collect it before…

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Bladder, Bowel and Sexual Dysfunction in NMO – Breakout Session – 2018 NMO Patient Day

Dr. Cabahug: Good afternoon everyone. My name is Doctor Cabahug, I’m a physiatrist from Johns Hopkins slash Kennedy Krieger Institute in Baltimore. Today we’re going to talk about bowel and…

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About Us

About Us About Us The Guthy-Jackson Charitable Foundation Founders Our Team About Us Medical Advisors & Consultants Industry Council CIRCLES Biobank Special Projects & Programs Funded Research Foundation Events Press…

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NMO-PRO – Impact of COVID-19 on NMOSD

GJCF NMO-PRO Survey

Thank you for your interest in participating in NMO-Pro surveys. By participating in surveys, research studies and clinical trials, NMOSD patients have enabled and accelerated many efforts to improve quality of life, develop new treatments & ultimately find cures for this rare disease. Rare patients helping rare patients. That is the power of rare.

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Victoria Jackson inducted into the National Women's Hall of Fame

Victoria Jackson Inducted into the National Women’s Hall of Fame

Sept. 16, 2017 – Seneca Falls, NY – Victoria Jackson, Co-Founder of The Guthy-Jackson Charitable Foundation, was inducted into the National Women’s Hall of Fame in recognition of her distinguished…

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Recommended Reading

Recommended Reading The Power of Rare The Power of Rare Back The Power of Rare The Power of Rare A Blueprint for a Medical Revolution Author(s): Victoria Jackson & Dr….

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Complexity and heterogeneity in demyelinating disease

In 1894, Eug?ne Devic (1858–1930) described a 45-year-old female hatter in whom ‘l’autopsie r?v?la l’existence d’un foyer de my?lite aigu? diffuse localis?e ? la r?gion du renflement lombaire et d’une…

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Kathy Najimy interviews Victoria Jackson

Kathy Najimy: Hi, I’m Katie Couric, that’s a lie. I’m lying, I am Diane Sawyer. What? No, I’m lying again. I am Kathy Najimy and I am here today because…

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Diagnosis

The 2015 consensus diagnostic criteria for NMO and NMO spectrum disorders (NMOSD) apply the latest scientific and medical insights into adult and pediatric disease, imaging, laboratory tests, and potential relationships…

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