CPODD Family Retreat 2016 “Superhero”
Alexander City, AL – In June 2016, the University of Alabama at Birmingham’s (UAB) Center for Pediatric Onset Demyelinating Disease (CPODD) hosted its annual retreat for families who have children…
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NMO Biomarkers and You
‘NMO Biomarkers and You’ is part one in a new series titled ‘Do You Know NMO’. Test your knowledge with the interactive quiz at the end of this article. Today, more than 7 billion…
Biomarkers and You Quiz
Show What You Know About NMO Part 1: NMO Biomarkers & You Welcome! Let’s Begin the Quiz. Start True or False? Question {{question.id + 1}}: {{question.name}}. Continue True False Answer…
Dining for NMO at Flatbread Company
Providence, RI – Creator of Dining for NMO, Gabriela Romanow, guest blogs about her most recent event and how you can join the program. Last night, Flatbread Company in Providence,…
Donate to NMO Research with Facebook Fundraisers
Facebook has been reinventing the way people communicate and stay informed of their favorite organizations, and now it’s reinventing the way you can contribute to your favorite cause. They’ve added new…
Industry Council
Alexion Alexion is a global biopharmaceutical company focused on serving patients and families affected by rare diseases through the discovery, development and commercialization of life-changing medicines. As the global leader…
Protected: International Clinical Consortium
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Honoring a Son by Educating Thousands
Mother of a son lost to rare autoimmune disease educates tens of thousands of medical professionals. Getting up to speak to an audience can be a daunting task for anyone….
Giving Tuesday
A Rare Approach to a Rare Disease What is NMO? Neuromyelitis optica (NMO) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves, spinal…
#GivingTuesday NMO Toolkit
What is #GivingTuesday? Entering its fifth year, #GivingTuesday is a global day of giving fueled by the power of social media and collaboration. Celebrated on the Tuesday following Thanksgiving (in…
The Power of Rare
Narrator: What does it mean to have a rare disease? To be alone? To be lost? Or is there an infinite power in rare? A decade ago, little was known…
NMO Advocacy at Denver Chronic Disease Awareness Day
NMO advocate Tim Woods attended Chronic Disease Awareness Day at the Denver, CO, State Capitol on March 9, raising awareness about NMO. A collaboration of different charitable organizations, Chronic Disease…